European pre-T1D Registry

European pre-T1D Registry is a network of investigators who register children and adults diagnosed with early-stage type 1 diabetes to inform about monitoring, trials, and treatment to delay or prevent disease progression. European pre-T1D Registry is operated by Helmholtz Munich and functions as an umbrella for GPPAD, INNODIA and EDENT1FI. It was initiated in 2023 and includes data from more than 1000 persons.

A master database is available to registered investigators into which pseudo-anonymised data from individuals diagnosed with early-stage type 1 diabetes can be transferred automatically and regularly. Data include autoantibody, metabolic and meta data identified through screening initiatives.

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